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Tag: palliative care

why I believe in music, or “I Was Born For This” – Austin Wintory

joan-of-arc-on-corronation-of-charles-vii-in-the-cathedral-of-reims.jpg!Large

  “Joan of Arc upon Coronation of Charles VII in the Cathedral of Reims (1854) 

        Jean Auguste Dominique Ingres

                ____________________

many years ago, while I was volunteering 
at our hospital’s palliative care unit, nearby, 
recently installed as a response to, among 
other pressing preoccupations, but most 
urgently then, the AIDS crisis, I was asked 
to sit by a lady in profound distress, her 
family, Western Buddhists, would go to 
lunch while I would sit by her to comfort 
her as much as I could

she was dishevelled, of course, completely 
disconcerted, all ajitter, lost, and evidently
confused, in her profound isolation, not to 
mention in the crumpled state of her 
harried bedunable to communicate, or
reason

I found a chair, sat by her with earnest 
concentration, my partner had died 
there, only recently, on that very unit, 
and I was expressing, to all of those 
concerned in his unparalleled care, 
my unlimited appreciation

I lay a hand gently upon her arm, to let
her feel, at least, the safety that my 
touch could allow, to let it settle on 
her, however removed might be her 
remaining consciousness, began to 
sing quietly a chant I’d been intoning   
from a creed I’d turned to for comfort 
in my own personal anguish, at the 
loss of my own friend, a call, an 
invocation, the continuous iteration 
of a line that brought solace, Om Nama
Shivaya, I prayed, over and over again, 
with the greatest intention, whatever
that phrase might’ve, I’ve forgotten, 
meant

she relented, found her space, little by
little she became, as though grace had 
descended upon her, calm, by however  
infinitesimal degrees, while I continued, 
now, my hopeful, helpful, it appeared,
manifestly mystical, intervention

she had become restful, I’d 
accomplished essentially, I gathered, 
my primary mission, though I 
continued, with some sense, perhaps
even a glow, of personal pridemy 
soulful incantation

then in a voice not much louder than a 
whisper, but much less distraught than 
a moan, she began to join in with row, 
row, row your boat, tunefully, over and 
over again, accommodating herself,
though, naturally, exceedingly weakly,   
to my rhythm, I felt I was experiencing,  
right there, and then, through the    
power of cadence, a miracle

when I looked back, upon hearing 
behind me a rustle, standing at the 
door was her family, wrapped in 
equal consternation 


here’s something with someone singing 
in several inscrutable languages for 
most of us, mostly, words from historical 
texts, in Greek, Latin, Olde English, 
Japanese, and French, I Was Born For 
This

that title, of one of the segments of 
longer work, Journey“, by a contemporary 
composer, Austin Wintoryis indeed a 
translation of Joan of Arc‘s words on the 
cross, “Ne me plaignez pas. C’est pour cela 
que je suis née.”, do not pity me, she says, 
I was born for this, Joan of Arc, my own 
personal Jesus

Shostakovich has an entire symphony,
his 14thcomposed of music to 
accompany classic poems, all in a 
variety of foreign, to him, tongues, but
translated back into Russian for his 
purpose in this particular, and not 
uncommon, instance, nevertheless 
pointed reference to music as superior
more direct, communication – note, here, 
the word, communication – it, the 14th,
is profound, extraordinary, read here 
first, then listen


R ! chard

Nemo – “Ennead I” by Plotinus (10)‏

 
 
Date: Fri, 8 Mar 2013 21:28:13 +0000
To: Richibi’s Weblog
From: comment-reply@wordpress.com
Subject: [New comment] “Ennead I” by Plotinus
 
Hi Richard,

Have you thought of writing or already written memoirs? I think I’d enjoy reading them.
Your second story reminded me of the Confessions by St. Augustine,
in which he grieved over the death of his beloved friend.

Descartes might say this about your “This is the census” moment: “I lisp, therefore I exist”.
But how would you interpret the “parable”?

What caused you to stop ministering at the palliative care unit after ten years?

 

 
a parable is in the eye of the beholder, Nemo,  
nearly by definition, and therefore wide in the
possible breadth of its interpretation, that wide
net, should it catch the imagination of many,
can describe a potent, though indefinable,
moral precept that even whole communities
can then propagate and follow, mysticized
fairy tales, for these last serve a similar
purpose, maybe the age of the listener,
reader, here, is the distinguishing factor,
adults have a hard time with fairy tales 
 
dimension to my lisp, if you’re asking what
moral precept I derived from that tale, it is
that something was profoundly watching,
unobtrusive, but gently ready to nudge just
enough to inspire hope, like a second wind
 
I felt, however solipsistically, that something,
someone, was listening, and that was enough,
that indeed would be, wouldn’t you think,
though the information was entirely
metaphorical and abstract 
 
but I’ve experienced too many moments of
transcendence not to subsribe to a more
than merely rational agenda, Shakespeare
again, There are more things in heaven and
earth, Horatio, / Than are dreamt of in your
philosophy.” – Hamlet, act 1, scene 5,
lines 186–187 – which I heartily second
 
no philosopher has ever admitted that but
Proust and Beethoven, which is why I’ve
somewhat put aside classic philosophy,
though I love the Moralists, after Rome
and before Christianity, Saint Augustine,
I’m afraid, however, distorted the facts,
as well as his great acuity, in order to
entrench a mythology, the dominion of
numinous, entirely male, incidentally,
Trinity, forcing Truth into a submissive,
not to say penitent, and furthermore
impotent, corner until the very Renaissance, 
specifically until Descartes, and, by the way,
until his near contemporary, Shakespeare,
1564 -1616, nearly the equal of Beethoven
and Proust in his philosophical perspicacity, 
To be, or not to beis of course the first
existential soliloquy of our era
 
Descartes, 1596 – 1650
 
 
after ten years at palliative care I had changed,
and the unit had changed, it had become more
regimented and constrictive than it had been in
its early, more companionable, and not yet so
regimented, years, I now had to go through
security to get to my station, which was not at
all the spirit in which I’d entered the service
 
I am now, I’m imagining, a poet, and live and
write accordingly, these very missives, Nemo, 
are my memoirs, at present you are my muse
 
thanks  
 
I hope you’re “enjoy[ing] reading them

 

 
Richard
 
 
 

Nemo – “Ennead I” by Plotinus (8)‏

 
Date: Thu, 7 Mar 2013 16:48:26 +0000
To: Richibi’s Weblog
From: comment-reply@wordpress.com
Subject: [New comment] “Ennead I” by Plotinus
 
It’s very touching story, Richard. Thanks for sharing. Though the last sentence is a bit anti-climatic, since I have as much reverence for Proust as you Plato. 🙂
 

For how long did you volunteer in the palliative care unit?

 
so many pathways have opened up, Nemo,
in our conversation, I’d determined to tackle
them in their chronological order despite
the immediacy, for me, of each question,
each philosophical paradox you might
propose, the order of your submissions 
 
but this reply of yours has me still laughing,
indeed guffawing, and I didn’t want to forego
the possibility of transferring the spontaneity
and exhilaration of the moment if in delivering
my response swiftly I could, timing talks, in 
other words, too
 
that our views would be so diametrically
opposed, my Proust your Plato, is, I think,  
hilarious, even, I believe, maybe karmic
 
  
another story, another, for me, it appears,
maybe parable, while grieving I’d taken
time off work, cause work, of course, itself
had lost all meaning, why would I hurt in a
world I no longer wanted to even live in,
I had majored in Camus, had been
prodoundly influenced by his L’Étranger“,
The Stranger“, and was drowning in the
 
to while away the time somewhat productively
– I’d understood that to merely sit and wait
would not of itself allow me to die, and I wasn’t
about to myself wittingly end it, the conclusion
I’d reached from another revelatory moment,
but that’s another story – I took on a job as a
census worker, going from door to door,
some hundreds of them, if not thousands, 
in my neighbourhood, introducing myself
each time as their census taker, “This is
the census”, I said 
 
have you even sensed the sibilants, Nemo, 
in that sentence, if you haven’t yet already
counted them, for that matter there are 
even more in this corollary one
 
I lisp, not in a pronounced manner but,
I’m aware, somewhat noticeably, found
out that my father also did, though strangely
I’d never registered it, my mother after he’d
died, in a conversation with me, noted it 
 
try saying “This is the census” some
hundreds if not thousands of times, Nemo,
the joke becomes cosmic, and indeed it did,
I knew God, or the entity that responded to
my prayers, was about, it was the moment
at which I first smiled, I think I might even
have giggled  
 
 
I worked, or rather, I ministered, at palliative
care for ten years, to answer your other
question 
 
 
cheers 
 
Richard
 

psst: despite our profound, it appears,
          philosophical divergences, Nemo,
          let’s be friends, I would not hold
          your views against you, all roads,
          I believe, lead to Rome, so long as 
          it doesn’t block altogether one’s
          path    
 
          also philosophers must always be
          open to the next question, for none
          of them, they know, can ever be
          definite, the lesson is in the 
          conversation, and I’m having here
          a great time 
 
          thank you 
 
 
 
 
 
 

Nemo – “Ennead I” by Plotinus (7)‏

 
Date: Sun, 3 Mar 2013 21:45:49 +0000
To: Richibi’s Weblog
From: comment-reply@wordpress.com
Subject: [New comment] “Ennead I” by Plotinus.
 

To apply Plotinus’ theory of memory to Alzheimer, and answer your earlier question. The disease damaged the first component of memory, i.e., our memory storage facility, but it leaves the second and third components intact, where “we” are most active. People afflicted with Alzheimer are no less human than the rest, because they still have their thoughts, emotions, desires, judgment and will.

To use analogy, I’d liken living with Alzheimer to walking on the beach. Our memory is like the footprints we leave in the sand, which are constantly washed away by the waves, but the lack of footprints doesn’t prevent us from continue walking/living

 
 
I have no doubt that there is a soul, a human
entity, behind even a vegetative living being,
Nemo, let me tell you a story, I worked for
years in a palliative care unit as a volunteer
after the death of my beloved, who had died
there in one of their first units in the late 80s,
it was my way of saying thank you
 
a woman there lay in extremis, making no
sense of the fray that stirred ceaselessly
about her, her family distraught over her
perilous state fussing and worrying,
helpless and trying to find nevertheless
purpose midst unfamiliar and stressful
feelings, awash in their stray, unsettled, 
energy
 
their senior member, an actual pastor,
asked if I would sit by their mother’s side
while they all took a necessary break for
lunch, of course I immediately acceded,
that’s what I was there for    
 
gently I sat by her side, I had found
solace in a particular Oriental esoteric
faith meanwhile for my own debilitating
anguish, which had bequeathed me a
chant that would settle often and with
reverence my most aggrieved moments,
little by little it had rendered
acknowledgment, resolve, and, dare I
say, even grace, to my distress 
 
I began to murmur this chant as I lay my
hand upon her arm, she all aflutter from
her chronic delirium trying to find,
hopelessly it appeared, a place to settle,
I could only with my touch console
somewhat, I wistfully imagined
 
in my monotone I continued to issue
the palliative vowel sounds, surrounding
them with as much compassion and
gentle harmony as I could muster,
knowing that these must reach the soul,
something I had been discovering from
my own fraught experience
 
her body began to settle, there was no
question of reaching her mind, any kind
of intelligible conversation, but you do
that also with a very young child, and like
a very young child she continued to
respond 
 
to my chant, which had been like a river
flowing, constant and murmuring, finding
the most soothing paths of a trickling 
rhythm, she began to harmonize
 
row, row, row, your boat, she began
to sing, haltingly of course, at first
tentatively, but then with more and
more, though ever reliant, confidence
 
I believe that God had been talking 
there to all of us, I turned to see the
family standing in the doorway, still
and hushed
 
 
where, Nemo, does that leave philosophy
 
therefore Proust   
 
 
Richard